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So I shared my first Shitty First Draft in a lovely, small discord server I’m in. And my friend said “It can be hard to claim titles like that. In the parlance of a fall, I’d say I didn’t fall, so much as sauntered vaguely downwards.”

Once I’d stopped laughing, it occurred to me that he’s right and this is a useful concept. In their podcast, Lani and Kelly are always talking about reframing concepts so that they work for you. A lot about Brene Brown’s book needs reframing, for me, to be useful.

Here’s the context of the comment. if you don’t know Good Omens (either the book or the TV show - they’re both great)... Crowley is a demon, but he isn’t really a bad demon. The writers say that he’s an angel who didn’t so much fall, as sauntered vaguely downwards. This is a very in-character comment for him. He doesn’t take anything too seriously - until he does.

I know about falling. And sometimes it’s hard to take a fall seriously. I once tumbled off a bus ramp, out of my wheelchair (thankfully, it didn’t end up on top of me), ending up on the pavement. I had almost no choice in what I was going to do next. For a little while, I was terrified, while my carer picked me up off the ground and a doctor visited. And then my spouse came home, and while they were totally sympathetic, we both laughed at the image of me, flat on my face - again. Laughing helped.

And then we started to take it seriously, and together we worked out how to get me back on my feet. We needed a medical care plan to deal with my wonky body being a bit more broken than most people’s might be after that fall. My spouse, who trained as a lawyer, helped me take a legal claim against the bus company (the ramp was broken). Together we helped me work through some fear of public transport that resulted - and while I’ve continued to be affected by that, I can now travel on buses again.

This sort of takes me back to the book. I’m re-reading and working through Chapter 1, where Dr Brown says:

“Hurt is hurt, and every time we honor our own struggle and the struggles of others by responding with empathy and compassion, the healing that results affects all of us.”


When I was writing the other day and resisting the concept of a fall, I can see that I was working from what Dr Brown calls a scarcity model of suffering. Your suffering is worse than mine because... You are more entitled to concepts like ‘trauma’ and a ‘fall’ because... When we do this, we invalidate our own worthiness. And, as I was trying to explore yesterday, all of this ‘Rising Strong’ work starts from the realisation of our worthiness. From the idea that we are enough.

Hurt is hurt, and honouring our own struggle recognises our own worthiness.

Some people would say that I had a Big Fall. (For example, I became physically disabled and had to retire very early from my teaching job; I couldn’t work for many years; I still deal with pain and illness on a daily basis... and that’s just the beginning.) From another perspective, when compared with other people’s struggles, all that happened to me was that I sauntered vaguely downwards. But I think it doesn’t matter which is the reality. I’m still facedown in the mud after a ‘towering’. I still need to decide what the fuck I’m going to do next.

I can honour my own struggle - even if a big part of what I need to rumble with, in this process, is the need to be heard by others. Maybe they won’t always - or ever - be able to hear or validate my story. (Dr Brown does talk about the loneliness of this process.) But I can do the validation thing for myself. I’m not saying that’s going to be easy... But it’s a choice I can make.

In a fanfic series I’m writing, a character is going through a messy redemption process. In writing it, I’m working through the idea of who we decide we’re going to be. “My choices are my own,” the character says. He’s choosing who he’s going to be.

I want to choose who I’m going to be.

My ‘YES’ for this week* is the same as (I think) Kelly’s was one week: I want to be in the arena. Dr Brown talks about how, after we’ve been brave and it’s been followed by a fall, we end up facedown in the arena. That’s when we have to make the choice to get up, or not. On the podcast, they talk about ‘towering’ (as in, the tarot card The Tower), and how after that kind of experience you can end up facedown in the mud with choices to make. Or, also to draw on an image from the podcast, when the barn has burnt down around you, you have to decide whether to roll over and look up at the stars.

I started this ‘Rising Strong’ process because I’m sick of letting life happen to me, and feeling like I have no choice in how I respond. I might not always like the limited range of choices I get offered, but I always, always have choices. About how I’m going to react, and who I’m going to be.

Now that I’ve sauntered vaguely downwards and ended up facedown, the collapsed Tower in rubble all around me, what am I going to do next?

The answer ‘get back up’ might sound really simple, but I think I need to keep consciously making that choice. It’s not an easy answer, when you’ve been down this long.

I think Crowley might say: Heaven and Hell might not want me back, but there’s still things in the world worth getting up and living for.

*When I say ‘for the week’, I’m following the podcast structure of doing one of these homework things per week. I suspect it’s going to be several weeks on each, honestly. This is heavy, complex and difficult stuff, and I’m disabled and have a job. :D
sophiarants: (Default)
If I had read ‘Rising Strong’ without listening to Lani and Kelly’s podcast first, there’s no way I would have thought it was for me.

Rising Strong is about getting up after a fall. It’s about serious people who’ve faced serious things and were incredibly brave and got back up again. And that’s not me.

I’m not Humpty Dumpty. I haven’t had a big fall. I’ve barely had a little one. I look around at the falls people around me have had - Lani and Kelly just two examples of many amazing people who have to deal with major falls and get right back up again - and I feel like that’s just not me. I don’t have a reason. And yet, here I am, on the ground. Time after time after time.

This refrain, ‘I don’t have a reason,’ has been how I’ve invalidated my pain - time after time after time.

I’ve been disabled since the age of about 28. I have a genetic condition, but it only fully manifested when I got older. These days, I use a wheelchair or other walking aids. Meanwhile, aged 33, I got a diagnosis of autistic spectrum disorder. I was half way through a PhD at the time. (I finally finished the PhD seven years later, aged 40.) I’m also queer (bi, demi and nonbinary), which were also things that all occurred to me very late and very slowly,

I survived my whole childhood, and a lot of my adulthood, not understanding how I was different. But, somewhere inside me, I always knew. I knew something was ‘wrong’ with me. It always felt like society - the people around me - were keen to tell me and show me just how ‘wrong’ I was.

In Brene Brown’s words: those people were doing their best, but their best wasn’t good enough.

My parents didn’t mean to hurt me when they punished me for stimming and echolalia and a lot of other autistic coping methods. They thought those behaviours would make life harder for me in society. They were trying to make things better for me.

They were doing their best.

But their best wasn’t good enough.

I could repeat that paragraph, with slightly different details, for a lot of people and groups of people. The doctors who hurt me when I was in psychiatric ‘care’; their colleagues who continue to belittle and dismiss and occasionally mistreat me in appointment after appointment, right up to today. Who’ve taught me that asking for medical help only ever leads to neglect and abuse of power and ‘treatment’ that damages me... and the constant message that I am broken and useless and will never deserve the resources that I take and take and take from society. Who, by extension, have taught me that asking for any kind of help is a bad idea. That I don’t deserve it.

They were doing their best.

But their best wasn’t good enough.

The ‘friends’ who left me feeling like I wasn’t worth their friendship. Or anyone’s. People who, even today, give up talking to me because disabled people are boring - because I have no energy and can’t always keep up social appointments or see my friends regularly ‘enough’ for them.

They were doing their best.

But their best wasn’t good enough.

I could list many more examples of times when I’ve been broken-hearted, and learned (taught myself?) that I deserved it.

But none of that is serious, you know? Even as I write these things down, even as it hurts to write them down and see them in black print on a white page, done-and-can’t-be-undone, there’s a very loud voice at the back of my head screaming attention seeker - freak - broken - bitch - scrounger - drain on the resources of society - all you do is take take take and you’re not even worth what they deign to give you...

The phrase ‘They were doing their best - but their best wasn’t good enough’ is an absolute kicker for me. I’m happy to believe Part 1. Part 2? That I don’t deserve people’s crap? No. I can’t believe that.

It’s all I deserve.

When it comes down to it, I don’t honestly know why I feel this way. Being autistic and disabled in our society is tough, and can lead to difficult experiences. But that doesn’t feel like enough. I feel like I will always hear that voice in my head that says, you don’t even deserve for your experiences to be taken seriously. Look at the people around you - at what they’ve suffered. Stop fucking complaining.

Until recently, I didn’t even believe that I deserved the term ‘trauma’. Trauma is PTSD. It’s a term that people get to use if really terrible things have happened to them. If they’ve had a really bad fall.

I have not had a bad fall. I just won’t get up.

‘Just get the fuck up, Sophia, you broken freak,’ screams the voice in my head.

But I can’t. I just can’t. I’ve been on the ground for a long time. And I don’t know why.

I started to claim the term ‘trauma’ very recently, based on a small number of difficult things that have happened to me, and a large number of very small things that happen on an almost-daily basis. I have a friend who works with disabled and autistic people with trauma - she calls her work trauma-sensitive yoga. She says that, for many disabled and neurodivergent people, the experience of living in society can be traumatic. Maybe I’ll try to explore that more in another entry, another time. All I know is that, as much as it feels like I shouldn’t claim that term, that I don’t deserve it... it’s also been really helpful and empowering to let myself claim it. To say, yes - what’s happening to me, what has happened to me in the past, what continues to happen to me, is traumatic.

I still fear, very strongly, that someone will come along who’s experienced real trauma and say, How dare you claim this term? Nothing has happened to you that deserves that term. You don’t deserve it.

But here’s the thing. The concept of trauma is a framework. In my ‘offline life’, I’m a qualitative researcher. I love frameworks. Names have power, just like in the old fairy tales. (In the Pagan world that I sometimes inhabit, knowing the name of a god or goddess can be empowering - as much as it can also be dangerous. They might want something from you, if you learn who they are.) This name, this framework - trauma - it’s just a way of understanding something. Just like autism and disability, which are concepts that I’ve studied as a social scientist. These frameworks help me to organise the world, and my (autistic) brain really likes the world to be organised. It’s a key to fit a keyhole. There may be many keys that fit it. But if I can use the concept to help me turn the key and walk through the door, then it’s a powerful resource. And gods know I need those. I’ve been stumbling in the dark looking for a way to open the door for a long, long time.

I want to thank Lani and Kelly for ‘Big Strong Yes’. This podcast is an amazing resource - it’s helped me to think that if they can do it, maybe I can. I’m a little bit stuck at the beginning. I don’t even feel like I deserve to talk about having had a fall. But maybe I can still learn to get up, anyway. I’m terrified that I can’t - that I’m just broken, and that after 41 years of being broken, I always will be.

But, broken-hearted or not, I’m going to be brave anyway.

Next entry, I’ll write about my Year of Bravery - and I hope I’ll be able to be a bit more positive!

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sophiarants

Nice to Meet You

Soph. Queer, nonbinary, autistic, disabled, qualitative researcher.

I got bored of being afraid & now I’m doing the Rising Strong thing (Brene Brown’s approach to getting up after a fall, aka dealing with, ugh, feelings). These are my reflections.

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